spunkycarol

Congressmen Want National MS Registry // Current

Congressmen Michael C. Burgess, M.D. (R-Texas) and Russ Carnahan (D-Missouri) introduced bi-partisan legislation to create a national registry to store information about Americans living with Multiple Sclerosis (MS.) The goal is to support future planning of health care needs, detect changes in health practices, assess disease burden, promote advocacy, and support a wide range of research initiatives.

The registry will also serve as a source of epidemiological information for researchers, healthcare providers, patients, and the broader MS community. Surprisingly, the last national study of incidence and prevalence of MS was conducted over 30 years ago in 1975.